The U.Va. Health Ehlers-Danlos Syndrome and Hypermobility Disorders Center hosted an EDS Research Symposium Thursday and Friday.
I was diagnosed with Ehlers-Danlos syndrome in 2021 at age 59. I'm glad I didn't know about my diagnosis before because my childhood would've been different. I now know what I need to do to take care ...
Ehlers-Danlos syndrome (EDS) is a genetic condition present at birth that involves problems with the body’s connective tissues. Connective tissues make up and support how the body is held together — ...
In medical school, residency, and fellowship, I learned to think of Ehlers-Danlos syndrome (EDS) as a rare — or “zebra” — condition, characterized by joint ...
Medical Xpress: Researchers identify genetic variants and patterns associated with hypermobile Ehlers–Danlos syndrome
Hypermobile Ehlers-Danlos syndrome (hEDS) is one of the most common heritable connective tissue disorders. Early estimates have reported that this genetic disorder affects at least one in 5,000 ...
The Conversation: Bendy joints, stretchy skin, clumsiness. Why hypermobile Ehlers‑Danlos Syndrome is often missed – and what it has to do with autism
There is growing interest in a connective tissue condition called Ehlers-Danlos Syndrome. As more adults are diagnosed with autism, some might not be aware their history of bendy joints and clumsiness ...
Bendy joints, stretchy skin, clumsiness. Why hypermobile Ehlers‑Danlos Syndrome is often missed – and what it has to do with autism
“Chandelier” singer Sia has revealed she has a rare genetic condition called Ehlers-Danlos syndrome that results in chronic pain. The disease affects 1 in 5,000 people globally. It causes hypermobile ...
STAT: Revenge of the gaslit patients: Now, as scientists, they’re tackling Ehlers-Danlos syndromes